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Tytuł:
Usage and impact of patient‐reported outcomes in epilepsy
Autorzy:
Persson, Ulf
von Oertzen, Tim J.
Ondrušová, Martina
Mitchell, James W.
Marusic, Petr
Vonck, Kristl
Pana, Adrian
Lattanzi, Simona
Biraben, Arnaud
Kimiskidis, Vasilios K
Jennum, Poul Jørgen
Bosak, Magdalena
Ferreira, Lara N.
Opis:
Background: The use of patient-reported outcomes (PRO) in clinical practice is gaining increasing attention. This study aimed to provide a critical assessment of the current state-of-the-art and beliefs about the use of PRO in the management of people with epilepsy across some European countries. Methods: Structured interviews were conducted with European experts to collect insights about (I) the personal experience with PRO; (II) the value and impact of PRO in the decision-making process at the national level; and (III) the interest for and use of PRO by national health authorities. Results: Nine neurologists (Austria, Belgium, Czechia, Denmark, France, Greece, Italy, Poland, and United Kingdom), three health economists (Portugal, Romania, and Sweden), and one epidemiologist (Slovakia) participated. They all stated that PRO are collected at their own countries in the context of clinical trials and/or specific projects. During everyday clinical practice, PRO are collected routinely/almost routinely in Austria and Sweden and only at the discretion of the treating physicians in Czechia, Denmark, France, Greece, and Portugal. There was complete consensus about the favorable impact that the PRO can have in terms of clinical outcomes, healthcare resources utilization, and general patient satisfaction. Only participants from Portugal and Sweden answered that the PRO are perceived as very important by the National Health Authorities of their respective countries. Conclusions: Differences exist in attitudes and perspectives about PRO in epilepsy across Europe. An active plan is warranted to harmonize the measurement of PRO and ensure they can be relevant to people with epilepsy and health services.
Dostawca treści:
Repozytorium Uniwersytetu Jagiellońskiego
Artykuł
Tytuł:
The Polylogue Project : shortmind
Autorzy:
Wawrzycka, Jolanta
Sanz Gallego, Guillermo
Bindervoet, Erik
Senn, Fritz
Conley, Tim
Mihálycsa, Erika
Păcurar, Elena
Terrinoni, Enrico
Henkes, Robbert-Jan
Bazarnik, Katarzyna
Opis:
O objetivo deste projeto colaborativo [editado por F. Senn, E. Mihálycsa e J. Wawrzycka], trabalho de dez autores e que cobre mais de dez línguas, é catalogar as possibi-lidades de tradução ao se recriar nos textos da língua alvo as formas anô-malas, elípticas, pré-gramaticais e incoativas que se tornaram como que uma marca distintiva do monólogo interior joyceano, chamadas aqui de “shortmind”. Trata, portanto, de tó-picos como indeterminação, ordem (anômala) das palavras, pontuação, elipse, polissemia, agramaticalidade, sub-padrões linguísticos, etc, e exa-mina a (má)vontade de textos em tradução de romper com regras e normas de controle, correção e coe-rência (sintáticas e narrativas) arrai-gadas na cultura alvo.
The aim of this collaborative project [edited by F. Senn, E. Mihalycsa and J. Wawrzycka], the work of ten authors and covering more than ten lan-guages, is to chart the possibilities of translation to recreate in the TL texts, the anomalous, elliptic, pre-gramma-tical, inchoative forms that became almost a signature mark of the Joycean interior monologue, and which here are called 'shortmind'. It therefore addresses such issues as indeterminacy, (anomalous) word order, punctuation, ellipsis, poly-semy, ungrammaticality, linguistic sub-standards etc., and examines the (un)willingness of translation texts to breach ingrained rules and norms of (syntactic, narrative) control, correct-ness and coherence, in the TL culture.
Dostawca treści:
Repozytorium Uniwersytetu Jagiellońskiego
Artykuł
Tytuł:
Methodological guidance for selecting buffers in greenspace : health studies
Autorzy:
Su, Jason G
Jashni, Mahsa
Feng, Xiaoqi
Amegah, Adeladza Kofi
Bach, Albert
Yang, Bo-Yi
de Hoogh, Kees
Dzhambov, Angel M
Jacquemin, Benedicte
Nawrot, Tim S
Psyllidis, Achilleas
Samuelsson, Karl
Fernandes, Amanda
Knibbs, Luke D
Ibarluzea, Jesús
Hystad, Perry
Jerrett, Michael
Fallah Madvari, Rohollah
Astell-Burt, Thomas
Giannico, Vincenzo
Gouveia, Nelson
Heinrich, Joachim
Pearce, Jamie
Valentin, Antonia
Triguero-Mas, Margarita
Mehrparvar, Amirhooshang
Plusquin, Michelle
Zhao, Tianyu
Helbich, Marco
Bratman, Gregory N
Markevych, Iana
Dadvand, Payam
Yang, Jun
Knobel, Pablo
Miri, Mohammad
Fuertes, Elaine
O'Callaghan-Gordo, Cristina
Labib, S M
Nieuwenhuijsen, Mark J
Hartig, Terry
White, Mathew P
Lertxundi, Aitana
Kogevinas, Manolis
Mitchell, Richard
Zare Sakhvidi, Mohammad Javad
de Vries, Sjerp
James, Peter
van den Bosch, Matilda
Ubalde-Lopez, Mònica
Sanesi, Giovanni
Zhang, Jinguang
Browning, Matthew H E M
Opis:
Greenspace can promote health via diverse pathways. A common approach to assessing greenspace exposure is to estimate vegetation availability within buffers surrounding locations where people reside or spend time. However, no clear framework for informed buffer selection exists, and choices made show considerable heterogeneity, impeding evidence synthesis and causal inference. In this Personal View conducted by an interdisciplinary panel of experts, we aimed to establish a framework for informed buffer selection for epidemiological studies on greenspace. We began by reviewing available approaches for the selection of buffer types, which range from single fixed-location approaches to high-resolution mobility-based activity-space approaches, as well as different buffer sizes. We then summarised the determinants of buffer type and size selection including health outcomes and underlying mechanisms, study population, contextual factors, and data characteristics. Finally, based on these determinants, we developed recommendations for future research. Buffer type and size selection should be hypothesis driven, reflecting presumed greenspace-health mechanisms. Buffer selection should target activity-based approaches where feasible, and multiple buffer sizes should be tested. Overall, the assessment of greenspace exposure should shift from ad-hoc approaches to personalised, multiscale, and context-specific methods. We call for standardising and reporting the rationale for buffer selection to minimise bias and enhance comparability and evidence synthesis across studies.
Dostawca treści:
Repozytorium Uniwersytetu Jagiellońskiego
Artykuł
Tytuł:
Same data, different analysts : variation in effect sizes due to analytical decisions in ecology and evolutionary biology
Autorzy:
Thawley, Christopher J.
Ferreira-Arruda, Thalita
Rugemalila, Deusdedith
Taff, Conor Claverie
Hager, Heather A.
Schmoll, Tim
Ke, Alison
Fisher, David N.
Payo-Payo, Ana
Mos, Benjamin
Abbey-Lee, Robin N.
Martin, Charles A.
Manrique-Garzon, Laura Milena
Michelangeli, Marcus
Shapiro, Julie Teresa
Rosenberg, Michael S.
Schroeder, Julia
Cox, Murray P.
Novotny, Jessie Lanterman
Santos, Leticia Pereira
Kačergytė, Ineta
Muraina, Taofeek Olatunbosun
Griffith, Frances J.
Riva, Federico
Paterson, John Harold
García-Cervigón, Ana I.
Camerlenghi, Ettore
Macphie, Kirsty H.
Schmidt, Marcus
Youngflesh, Casey
Palacio, Facundo Xavier
Campbell, Sara E.
Skupien, Fabrício Luiz
Keogan, Katharine
Perry, Kayla I.
Bell, Kristian
Good, Megan Kate
Harrison, Natasha Dean
Paquet, Matthieu
Zilio, Giacomo
Pottier, Patrice
Organ, Chris L.
Döbert, Timm Fabian
Greenler, Skye M.
Marchand, Philippe
Smith, Jeremy A.
Elmore, Jared Alan
Turnell, Biz R.
Jucker, Tommaso
Gandy, Sara L.
Verrelli, Brian C.
Atkins, Jeff W.
Razafindratsima, Onja H.
Vélez, Juliana
Johnsson, Martin
Crouch, Connor Davidson
de Sousa, Alexandra Allison
Martin, Dominic Andreas
Tanentzap, Andrew J.
Walker, Xanthe J.
Wolfson, David William
Bradham, Jennifer
Ross, Jessica
Atkinson, Joe
Barrett, Meghan
Gould, Elliot
Shearer, Caroline L.
Wood, Andrew
Law, Alan
Kaltz, Oliver
Gliksman, Daniel
Drobniak, Szymon
Hagan, James G.
van Oordt, Francis
Hsu, Bin-Yan
Billman, Peter D.
de Lima, Daniela Oliveira
Blake, Shannon
Finch, Elizabeth A.
Kothari, Shan
Griffith, Daniel M.
Herrera-Chaustre, María Laura
Slinn, Heather Lea
Ramananjato, Veronarindra
Zimmer, Cédric
Meiners, Scott J.
Martinig, April Robin
Goslee, Sarah C.
Campos, Leonardo L. F.
Gilles, Marc
Duffy, Alexandra Grace
Baker, Christopher M.
Vergara-Florez, Diana Carolina
Santostefano, Francesca
Tompkins, Emily M.
Dunn, Robert P.
Dobson, Adam J.
Salazar, Stephen M.
Eberhart-Hertel, Luke
Kochan, David P.
Takola, Elina
Géron, Charly
Freund, Cathryn A.
Blake, Charlie K.
Chik, Heung Ying Janet
Telford, Richard J.
Magellan, Kit
Zimmerman, Gregory Mark
Bertram, Michael Grant
Luquet, Martin
Roast, Michael James
Nooten, Sabine S.
Hamilton, Daniel G.
D’Amelio, Pietro B.
Goldspiel, Harrison B.
Mortensen, Jennifer
Vanderwel, Mark C.
Yen, Jian D. L.
Niemelä, Petri
McCallum, Erin S.
Malm, Lisa E.
Trlica, Andrew
Christie, Alec Philip
Mair, Magdalena M.
Weaver, Ryan J.
Salmón, Pablo
Caravaggi, Anthony
Harris, Jonathan Philo
Elsherif, Mahmoud Medhat
Vitali, Valerio
Murphy, Penelope Wrenn
Aloni, Irith
Havird, Justin Chase
Sánchez-Tójar, Alfredo
English, Holly M.
Pedersen, Karen Marie
Clark, Bethany L.
Walker, Jeffrey
Brand, Jack A.
Schtickzelle, Nicolas
Zitomer, Rachel A.
Kusch, Jillian M.
Larson, Courtney L.
Haesen, Stef
Chunco, Amanda J.
Moiron, Maria
Heaton, Andrew J.
Schilling, Hayden T.
Killion, Alexander K.
Lagisz, Malgorzata
Bulla, Martin
Tarjuelo, Rocío
Hasnain, Sarah Syedia
Sollmann, Rahel
Fidler, Fiona
Merkling, Thomas
Grebe, Nicholas M.
Román-Palacios, Cristian
Frank, Graham S.
Gomes, Dylan G. E.
Kelly, Clint D.
Simón, Diego
Olin, Agnes Birgitta
Bradfer-Lawrence, Tom
Manhart, Michael
Whelan, Shannon
Villamil, Nora
Cressman, Kimberly A.
Alcaraz, Carles
Griffioen, Maaike
Fernandez-Juricic, Esteban
Cardoso, Pedro
Russell, Avery L.
Jung, Martin
Girndt, Antje
Fiorenza, Evan A.
Bordes, Camille Nina Marion
McCauley, Mark
Saccone, Patrick
Gratton, Paolo
Tortorelli, Claire Marie
Crotti, Marco
Dobler, Ralph
Fourcade, Yoan
Griffith, Simon C.
Rocha, Felipe Pereira
Nelli, Luca
Sutton, Guy F.
Ensminger, David C.
Beltrán, Iván
Martin, Jake Mitchell
Keppeler, Friedrich Wolfgang
Boyd, Melissa Anna
Gosnell, J. Stephen
Waryszak, Pawel
Brengdahl, Martin I.
Lindsay, Shane
Chuang, Angela
Forstmeier, Wolfgang
Tidau, Svenja
Fieberg, John
Johnson, Douglas H.
Perez, Grégoire
Lauterbur, M. Elise
Kuppler, Jonas
Mäntylä, Elina
Thierry, Hugo
Catanach, Therese A.
Vanderwel, K. Michelle
Bonisoli-Alquati, Andrea
Sadeh, Asaf
Iranzo, Esperanza C.
Aguirre, Luis A.
L’Herpiniere, Kiara
Parker, Timothy H.
Smith, Grania Polly
Whitney, Kaitlin Stack
Lembrechts, Jonas J.
Choy, Emily Sarah
Léandri-Breton, Don-Jean
Bonnet, Timothée
Dutta, Trishna
Dunning, Jamie
Garretson, Alexis C.
Mandeville, Caitlin P.
Iverson, Erik N. K.
Nightingale, Josh
Still, Shannon Michael
Abbott, Jessica K.
Parker, Darren James
Ruuskanen, Suvi
Fontaine, Amélie
Scott, Drew A.
Vanderwolf, Karen J.
Ostevik, Kate L.
Lievens, Eva J. P.
Botterill-James, Thomas
Berauer, Bernd J.
Mammola, Stefano
Geary, William L.
Jimoh, Saheed Olaide
Duncan, Alison B.
Fraser, Hannah S.
White, Rachel Louise
Ge, Xuezhen
Van de Vondel, Stijn
Chen, Xuan
Carroll, Charles J. W.
Rowland, Freya E.
Grames, Eliza M.
Nakagawa, Shinichi
Pascall, David J.
Covernton, Garth A.
Thomson, Jacqueline
Pasquarella, Valerie J.
Swallow, Ben
Bliard, Louis
Stuber, Erica F.
Bello, Suleiman Kehinde
Lauck, Katherine S.
Grossman, Jake J.
Urban, Lara
Proulx, Raphaël
Weller, Daniel L.
Roche, Dominique G.
Larkin, Daniel J.
Boyle, Sarah A.
Korsten, Peter
Contina, Andrea
Proulx, Michael J.
Van Eeckhoven, Jens
Ferguson, Stephen M.
Sharma, Nitika
Marshall, Benjamin Michael
Nolazco, Sergio
Schultz, Nick L.
Kim, Dongmin
Lalla, Kristen Marianne
Ernst, Ulrich Rainer
Rennison, Diana J.
Güncan, Ali
Riyahi, Sepand
Moreira, Bruno
Iannarilli, Fabiola
Wedegärtner, Ronja E. M.
Yanco, Scott W.
Randimbiarison, Finaritra Tolotra
Vollering, Julien
Schneider, Adam C.
Vesk, Peter A.
McNew, Sabrina M.
Arekar, Kunal
Nilsonne, Gustav
Bose, Aneesh P. H.
Walter, Jonathan A.
Gannon, Dustin G.
Howard, Tanner J.
Scroggie, Michael Peter
Doherty, Tim S.
Sitvarin, Michael I.
Vieira, Marcus Vinícius
Altschul, Drew
Fuentes-Lillo, Eduardo
Pruett, Jessica L
Schrock, Allie E.
Sales, Kris
MacLeod, Ross
Jorna, Jesse
Bussière, Luc
van der Wal, Jessica Eva Megan
Opis:
Although variation in effect sizes and predicted values among studies of similar phenomena is inevitable, such variation far exceeds what might be produced by sampling error alone. One possible explanation for variation among results is differences among researchers in the decisions they make regarding statistical analyses. A growing array of studies has explored this analytical variability in different fields and has found substantial variability among results despite analysts having the same data and research question. Many of these studies have been in the social sciences, but one small “many analyst” study found similar variability in ecology. We expanded the scope of this prior work by implementing a large-scale empirical exploration of the variation in effect sizes and model predictions generated by the analytical decisions of different researchers in ecology and evolutionary biology. We used two unpublished datasets, one from evolutionary ecology (blue tit, Cyanistes caeruleus, to compare sibling number and nestling growth) and one from conservation ecology (Eucalyptus, to compare grass cover and tree seedling recruitment). The project leaders recruited 174 analyst teams, comprising 246 analysts, to investigate the answers to prespecified research questions. Analyses conducted by these teams yielded 141 usable effects (compatible with our meta-analyses and with all necessary information provided) for the blue tit dataset, and 85 usable effects for the Eucalyptus dataset. We found substantial heterogeneity among results for both datasets, although the patterns of variation differed between them. For the blue tit analyses, the average effect was convincingly negative, with less growth for nestlings living with more siblings, but there was near continuous variation in effect size from large negative effects to effects near zero, and even effects crossing the traditional threshold of statistical significance in the opposite direction. In contrast, the average relationship between grass cover and Eucalyptus seedling number was only slightly negative and not convincingly different from zero, and most effects ranged from weakly negative to weakly positive, with about a third of effects crossing the traditional threshold of significance in one direction or the other. However, there were also several striking outliers in the Eucalyptus dataset, with effects far from zero. For both datasets, we found substantial variation in the variable selection and random effects structures among analyses, as well as in the ratings of the analytical methods by peer reviewers, but we found no strong relationship between any of these and deviation from the meta-analytic mean. In other words, analyses with results that were far from the mean were no more or less likely to have dissimilar variable sets, use random effects in their models, or receive poor peer reviews than those analyses that found results that were close to the mean. The existence of substantial variability among analysis outcomes raises important questions about how ecologists and evolutionary biologists should interpret published results, and how they should conduct analyses in the future.
Dostawca treści:
Repozytorium Uniwersytetu Jagiellońskiego
Artykuł
Tytuł:
CropPol : a dynamic, open and global database on crop pollination
Autorzy:
Otieno, Mark
Gibbs, Jason
Daniels, Jaret
Hansen, Katrine
Alomar, David
Lichtenberg, Elinor M.
Jeanneret, Philippe
Herrera, José M.
Stewart, Rebecca I. A.
Cunningham, Saul A.
Silva, Fabiana Oliveira da
Pisman, Matti
Gillespie, Robert L.
Pigozo, Camila Magalhães
Daily, Gretchen C.
Brittain, Claire
Nault, Brian A.
Park, Mia
Weekers, Timothy
Reilly, James R.
Smagghe, Guy
Ortega-Marcos, Jorge J.
Hevia, Violeta
Ellis, James D.
Ramos, Davi L.
Sutter, Louis
Woyciechowski, Michał
Michener, Charles D.
Boyle, Natalie K.
Crowder, David W.
Herzog, Felix
Jauker, Frank
González-Estévez, Miguel A.
Åström, Jens
Simmons, Benno I.
Williams, Neal M.
Wilby, Andrew
Blochtein, Betina
Campbell, Joshua W.
McGrady, CarleyM.
Freitas, Breno M.
Hoffman, George
Andersson, Georg K. S.
Rao, Sujaya
Magrach, Ainhoa
Albrecht, Matthias
Vilà, Montserrat
Loeb, Gregory M.
Osborne, Juliet L.
Oliveira, Rosana Halinski de
Wilson, Julianna K.
Elle, Elizabeth
Grab, Heather
Marks, Evan A. N.
Trillo, Alejandro
Benjamin, Faye E.
Lundin, Ola
Garratt, Michael P. D.
Gundersen, Knute B.
Biddinger, David J.
Pitts-Singer, Theresa L.
Chan, D. Susan Willis
Ricketts, Taylor H.
Artz, Derek R.
Nicholson, Charlie C.
Gaspar, Hugo
Allen-Perkins, Alfonso
Viana, Blandina Felipe
Winfree, Rachael
Mauchline, Alice L.
Krishnan, Smitha
Nesper, Maike
Bretagnolle, Vincent
Danforth, Bryan
Burns, Katherine L. W.
Arthur, Anthony D.
Classen, Alice
Castro, Sílvia
Ariza, Daniel
Rundlöf, Maj
Ekroos, Johan
Willcox, Bryony
Badenhausser, Isabelle
Steffan-Dewenter, Ingolf
Schüepp, Christof
González, José A.
Sidhu, C. Sheena
Coutinho, Jeferson
Gagic, Vesna
Montero-Castaño, Ana
Bartomeus, Ignasi
Mandelik, Yael
Lindstrom, Sandra A. M.
Cusser, Sarah J.
Stanley, Dara A.
Petersen, Jessica D.
Raine, Nigel E.
Rothwell, Nikki
Vogiatzakis, Ioannis N.
Nunes-Silva, Patrícia
Mallinger, Rachel E.
Eeraerts, Maxime
Fleischer, Shelby J.
Boreux, Virginie
Li, Jin
Joshi, Neelendra K.
Leclercq, Nicolas
Horgan, Finbarr G.
Mason, Keith
Pisanty, Gideon
Ward, Kimiora L.
Knapp, Jessica
Dupont, Yoko L.
Averill, Anne L.
Nauss, Thomas
Isaacs, Rufus
Bobiwash, Kyle
Bezerra, Antônio Diego M.
Jha, Shalene
Groot, Gerard Arjen de
Potts, Simon G.
Entling, Martin H.
Gikungu, Mary W.
Woodcock, Ben A.
Blechschmidt, Leah
Howlett, Brad
Scheper, Jeroen
Dalsgaard, Bo
Gut, Larry
Diekötter, Tim
Castro, Helena
Tscharntke, Teja
Badano, Ernesto I.
Shaw, Rosalind F.
Taki, Hisatomo
Kleijn, David
Dainese, Matteo
Ehrlich, Paul R.
Rad, Carlos
Schwarzbach, Franziska
Jodar, Diego N. Nabaes
Sciligo, Amber R.
Meeus, Ivan
Vereecken, Nicolas J.
Cariveau, Daniel P.
Brokaw, Julia
Robson, Andrew
Saez, Agustin
Chacoff, Natacha
Bloom, Elias H.
Garcia, Fermín José Chamorro
Bommarco, Riccardo
Fijen, Thijs
Mota, Lucie
Bianchi, Felix J. J. A.
Miñarro, Marcos
Lázaro, Amparo
Oeller, Elisabeth
Sritongchuay, Tuanjit
Rader, Romina
Wolters, Volkmar
Rowe, Logan M.
Loureiro, João
Kremen, Claire
Silva, Felipe D. da Silva e
Garibaldi, Lucas A.
Garcia, Daniel
Szentgyörgyi, Hajnalka
Klein, Alexandra-Maria
Veldtman, Ruan
Zaragoza-Trello, Carlos Z
Nilsson, Lovisa
Carvalheiro, Luísa G.
Henry, Steve
Zou, Yi
Hipólito, Juliana
Blanche, Rosalind
Parra, Guiomar Nates
Mayfield, Margaret M.
Cavigliasso, Pablo
Peterson, Stephen S.
Smith, Henrik G.
O'Reilly, Alison D.
Ghazoul, Jaboury
Stout, Jane
Vergara, Carlos H.
Colville, Jonathan F.
Dostawca treści:
Repozytorium Uniwersytetu Jagiellońskiego
Artykuł

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