Temat: Down Syndrome - Prolib Integro

Skocz do pozycji: 1.

Tytuł:: Child with Down Syndrome in a peer group.
Autorzy:: Jędrzejowska, Agnieszka
Tematy:: peer group
Down syndrome
integration; Pokaż więcej
Wydawca:: Uniwersytet im. Adama Mickiewicza w Poznaniu
Powiązania:: https://bibliotekanauki.pl/articles/941275.pdf Link otwiera się w nowym oknie
Opis:: The attitude towards people with disabilities has changed over the last century. Both deinstitutionalisation as well as integration and normalisation allowed many people with intellectual disabilities to improve their social situation. An example of such a systemic solution supporting the development of disabled persons are integration groups. The subject of this article is a report from a pilot study on the functioning of a group of children with Down syndrome within an integration group. The objective of this study was the presentation of the reasonability of inclusion within the integration group of children with Down’s Syndrome (with the homogeneous dysfunction). Observation and sociometric tests covered children with Down syndrome from two integration groups from kindergarten no. 109 in Wrocław, Poland. I consider the essence of integration, following A. Maciarz, to be the feeling of social bonds experienced by a disabled individual, a sense of belonging to a group, as well as the conviction that one is accepted by it, despite the fact that the standards adopted by their community are not always and not fully met by them. The research was carried out for six months in a kindergarten where I was a special educator.
Dostawca treści:: Biblioteka Nauki

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Skocz do pozycji: 2.

Tytuł:: “Life Goes On” – everyday life of children with Down syndrome and their families – selected aspects.
Autorzy:: Lipińska-Lokś, Jolanta
Tematy:: Down syndrome
child
family
everyday life; Pokaż więcej
Wydawca:: Uniwersytet im. Adama Mickiewicza w Poznaniu
Powiązania:: https://bibliotekanauki.pl/articles/941565.pdf Link otwiera się w nowym oknie
Opis:: The birth of a child is a major event in family life, which makes parents take on an important role in their lives, characterised by new tasks, chief among which are the care and upbringing of their offspring. Unfortunately, in many families, some factors emerge that may affect their functioning, disrupt the course of family life, and leave a permanent mark on the family’s history. Such a situation can be difficult for many –and many parents find the process of accepting a child with a disability (Down syndrome) and themselves as parents of a child with Down syndrome a long and arduous journey, since taking care of a child, upbringing and supporting their development is an issue in itself, but also a challenge for parents. In many cases, both the child and their parents need support in their daily life, ensuring their high quality of life. The objective of this study is to outline the functioning of families of children with Down syndrome. Due to the complex nature of the issue at hand, only selected aspects of the functioning of families were diagnosed, showcasing the changes in the family life and its functioning as a result of the birth of children with Down syndrome. The study was based on qualitative methodologies, by analysing individual cases using interview technique and interview dispositions. The research group comprised 10 families of children with intellectual disabilities, and the interviewed group was made up of 10 mothers and 3 fathers in Zielona Góra.
Dostawca treści:: Biblioteka Nauki

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Skocz do pozycji: 3.

Tytuł:: Intellectual potential of pupils with Down syndrome and diagnosed intellectual disability in the opinion of their parents
Autorzy:: Popowska, Krystyna
Tematy:: intellectual potential
Down syndrome
intellectual disability; Pokaż więcej
Wydawca:: Uniwersytet im. Adama Mickiewicza w Poznaniu
Powiązania:: https://bibliotekanauki.pl/articles/2194828.pdf Link otwiera się w nowym oknie
Opis:: Research was conducted to find out about the parents’ opinions on the intellectual potential of their children with Down syndrome and diagnosed intellectual disability studying in 4–8 grades of common, integration and special schools. Additionally, the factors determining the respondents’ opinions were analyzed. The paper uses the author’s questionnaire was placed on groups for parents of children with Down syndrome on the social network site Facebook. In addition, surveys were sent by e-mail to the primary school districts and non-governmental organizations that help children with Down syndrome. Fifty two questionnaires were collected. The results indicate that, despite intellectual disability, parents recognize the intellectual potential of their children. It can be assumed that assessments of the intellectual potential of students with Down syndrome and diagnosed intellectual disability are determined by their siblings in the intellectual norm, gender, using verbal speech, communication skills, social skills and opinions of their parents about their successes in school and progress as a result of the therapy.
Dostawca treści:: Biblioteka Nauki

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Skocz do pozycji: 4.

Tytuł:: Zespół Downa powodem odrzucenia przez rodzinę. Droga do adopcji - analiza przypadku
Down's Syndrome the reason for being abandoned by own's family. Way to adoption - case study.
Autorzy:: Czaja, Zofia
Opis:: Presented thesis is about children witch Down's syndrome and abandoned by their parents.Introduction covers Down's syndrome characteristics and different kind of chromosome disorders responsible for syndrome’s causes and frequency, there are also presented distinguishing characteristics for people having Down's syndrome. Moreover, this chapter presents polish institutions that are taking care of abandoned children, rules for adoption according to polish law and situation of handicapped children in chance for adoption.Then the purpose of this thesis was presented which was the recognition of abandoning handicapped children phenomena and their further living according to institutions which are taking them into custody.Next, two cases were described that concern children born with Down's syndrome and left at hospital's ward just after birth. Investigations are based on owns observations, medical and judicial documentation and interviews with parents who left their handicapped children but are still visiting them in Placówka Opiekuńczo - Wychowawcza.Discussion lets analyze presented earlier cases in context of specialized literature and draw conclusion.
Przedstawiona praca dotyczy problemu dzieci urodzonych z zespołem Downa i porzuconych przez rodziców. Wprowadzenie przedstawia charakterystykę zespołu Downa uwzględniając rodzaj zaburzeń chromosomalnych odpowiedzialnych za jego powstanie, przyczyny i częstość występowania tej choroby oraz cechy wyróżniające osoby z tym zespołem. Dodatkowo przedstawiono tu polskie instytucje sprawujące opiekę nad porzuconymi dziećmi, zasady adopcji w świetle polskiego prawa oraz pozycję dzieci upośledzonych w możliwości ich adopcji. W kolejnym etapie określono cel pracy, którym jest rozpoznanie zjawiska porzucania upośledzonych dzieci oraz ich los w kontekście instytucji, które je przyjmują. Następnie zaprezentowano dwa przypadki, które dotyczyły dzieci urodzonych z zespołem Downa i pozostawionych w oddziale szpitalnym po urodzeniu. Badanie przeprowadzono w Placówce Opiekuńczo - Wychowawczej na podstawie obserwacji własnej, dokumentacji medycznej, dokumentacji sądowej oraz rozmów z rodzicami pozostawionych dzieci, jednak wciąż je odwiedzających. Dyskusja pozwoliła na analizę prezentowanych wcześniej przykładów w odniesieniu do specjalistycznej literatury i wyciągnięcie wniosków.
Dostawca treści:: Repozytorium Uniwersytetu Jagiellońskiego

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Skocz do pozycji: 5.

Tytuł:: Potencjał intelektualny uczniów z zespołem Downa i orzeczoną niepełnosprawnością intelektualną w opinii ich rodziców
Intellectual potential of pupils with Down syndrome and diagnosed intellectual disability in the opinion of their parents
Autorzy:: Popowska, Krystyna
Tematy:: intellectual potential
Down syndrome
intellectual disability; Pokaż więcej
Wydawca:: Uniwersytet im. Adama Mickiewicza w Poznaniu
Powiązania:: https://bibliotekanauki.pl/articles/2194829.pdf Link otwiera się w nowym oknie
Opis:: Research was conducted to find out about the parents’ opinions on the intellectual potential of their children with Down syndrome and diagnosed intellectual disability studying in 4–8 grades of common, integration and special schools. Additionally, the factors determining the respondents’ opinions were analyzed. The paper uses the author’s questionnaire was placed on groups for parents of children with Down syndrome on the social network site Facebook. In addition, surveys were sent by e-mail to the primary school districts and non-governmental organizations that help children with Down syndrome. Fifty two questionnaires were collected. The results indicate that, despite intellectual disability, parents recognize the intellectual potential of their children. It can be assumed that assessments of the intellectual potential of students with Down syndrome and diagnosed intellectual disability are determined by their siblings in the intellectual norm, gender, using verbal speech, communication skills, social skills and opinions of their parents about their successes in school and progress as a result of the therapy.
Dostawca treści:: Biblioteka Nauki

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Skocz do pozycji: 6.

Tytuł:: The relationships between perceived stress and psychological well-being among mothers and fathers of children with Down syndrome
Autorzy:: Kózka, Anna
Przybyła-Basista, Hanna
Tematy:: children
parents
Down syndrome
stress
well-being; Pokaż więcej
Wydawca:: Wydawnictwo Adam Marszałek
Powiązania:: https://bibliotekanauki.pl/articles/2004956.pdf Link otwiera się w nowym oknie
Opis:: The aim of this study was to investigate the relationship between perceived stress and psychological well-being among parents of children with down syndrome. The relationship between perceiving one’s parenthood and well-being was also studied. The sample consisted of 126 parents (75 mothers and 51 fathers, aged 25-69) of children with down syndrome. our results show that ego-resiliency is a partial mediator of the relationship between perceived stress and psychological well-being. Moreover, there is a difference in well-being between parents who perceive their parenthood as a burden or challenge, and parents who report happiness and satisfaction.
Dostawca treści:: Biblioteka Nauki

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Skocz do pozycji: 7.

Tytuł:: Interactions of fathers and their children with autism
Autorzy:: Pisula, Ewa
Tematy:: autism
Down syndrome
father-child interaction
play; Pokaż więcej
Wydawca:: Polska Akademia Nauk. Czasopisma i Monografie PAN
Powiązania:: https://bibliotekanauki.pl/articles/55994153.pdf Link otwiera się w nowym oknie
Opis:: The aim of the present study was to compare the activity of fathers and their children with autism with those of children with Down syndrome, and normally developing children during the father-child interaction. Participants were 14 children with autism and their fathers, 15 children with Down syndrome and their fathers, and 16 normally developing children and their fathers. The age of subjects was between 3.0 and 6.0 years old. The study consisted of one 15-minute free-play session in the father-child diad, taking place in the experiment room. Differences between the groups of fathers were found in terms of three variables under analysis: frequency of looking at the child, physical contact with the child and suggesting play. Children with autism brought objects to their fathers or pointed out objects and directed their fathers' attention by vocalising less frequently than children with Down syndrome and normally developing children. Moreover, children with autism exhibited the fewest vocalisations combined with looking at the father and exhibited many more behaviours involving running and moving about the room than normally developing children. Self-stimulating behaviours were the most frequent in children with autism, with no differences in that respect found between children with Down syndrome and normally developing children. The analysis of fathers' behaviour demonstrates that fathers of children with developmental disorders focus on observing their children and attempt to keep close contact with them to a larger extent than fathers of normally developing children. The pattern of differences in the activity of fathers of children with autism and children with Down syndrome does not paint a clear picture. In general, fathers from both groups actively sought to maintain contact with their children. Differences in the activity during play between children with autism and the other subjects in the study are consistent with the clinical features of autism.
Dostawca treści:: Biblioteka Nauki

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Skocz do pozycji: 8.

Tytuł:: Ego-Resiliency and Parental Satisfaction Among Parents of Children with Down Syndrome
Autorzy:: Kózka, Anna
Przybyła-Basista, Hanna
Tematy:: children
parents
Down syndrome
ego-resiliency
parental satisfaction; Pokaż więcej
Wydawca:: Wydawnictwo Adam Marszałek
Powiązania:: https://bibliotekanauki.pl/articles/1998241.pdf Link otwiera się w nowym oknie
Opis:: Parents of children with Down syndrome face many challenges related to their children’s disability. They manage to raise their children primarily thanks to their internal resources, protective psychological traits and help from other people. The aim of this study was to investigate the level of ego-resiliency as an important personality trait in a group of mothers and fathers of children with Down syndrome. The relationship between ego-resiliency and parental satisfaction was also studied. The sample consisted of 126 parents (75 mothers and 51 fathers). Our results show that there is no difference in the level of ego-resiliency between mothers and fathers of children with Down syndrome. Nevertheless, it is noticed that there is a difference in perceived stress, psychological well-being and some aspects of parental satisfaction between parents with high and low levels of ego-resiliency. These results give an interesting insight into the internal func- tioning of parents of children with Down syndrome.
Dostawca treści:: Biblioteka Nauki

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Skocz do pozycji: 9.

Tytuł:: The development of the "I" in a girl with Downs syndrome at the age of 2: 9 years by supporting interactions
Rozwój "ja" u dziewczynki z zespołem Downa w wieku 2:9 lat pod wpływem oddziaływań wspomagających
Autorzy:: Kozieł, Barbara
Opis:: SummaryThe development of the Self is a fundamental element of personality development of both healthy people as well as mentally retarded. One of the earliest groups which still needs to be addressed are the programs which continue to support the development of children who have been diagnossed with Down syndrome.This work was to show the progress in the development of Self in a girl with Down's syndrome at the age of 2; 9 years. The program consisted of two aided diagnosis (initial and final) and 25 interactions supporting the development of girls. Diagnosis was carried out using samples of task, measuring the functioning of Self on four dimensions: physical Self, emotional Self, family Self and social Self and using the Munich Functional Development Diagnostics (MFDR) measuring the level of psychosocial development of the child. The results of the final diagnosis showed the greatest progress in the field physical Self (from 47.4% points to 84.2%) and family Self (from 57.1% to 92.9% points). Smaller Filmaster Self was in the area of social Self (from 66.7% points to 83.3%) and family Self (from 70% points to 85%).The overall age of the girls studied psychosocial development increased by 4 months (from 24 to 28 months). In contrast, deficit decreased by 1 month (from 8 to 7 months).
StreszczenieRozwój „Ja” stanowi fundamentalny pierwiastek rozwoju osobowości zarówno ludzi zdrowych jak również intelektualnie opóźnionych. Jedną z grup, do których należy kierować od najwcześniejszych lat programy wspomagania rozwoju są dzieci z zespołem Downa.Niniejsza praca miała na celu ukazanie postępów w zakresie rozwoju Ja u dziewczynki z zespołem Downa w wieku 2;9 lat. Na program wspomagania złożyły się dwie diagnozy (początkowa i końcowa) oraz 25 oddziaływań wspomagających rozwój dziewczynki. Diagnoza została przeprowadzona za pomocą próbek zadaniowych, mierzących funkcjonowanie Ja na czterech wymiarach: Ja „cielesnym”, Ja „emocjonalnym”, Ja „rodzinnym” i Ja „społecznym” oraz przy użyciu Monachijskiej Funkcjonalnej Diagnostyki Rozwojowej (MFDR) mierzącej poziom rozwoju psychospołecznego dziecka. Wyniki diagnozy końcowej wykazały największy progres w zakresie Ja „cielesnego” (z 47,4% punktów do 84,2%) oraz Ja „rodzinnego” (z 57,1% punktów do 92,9%).Mniejszy progres nastąpił w obszarze Ja „społecznego” (z 66,7% punktów do 83,3%) oraz Ja „rodzinnego” (z 70% punktów do 85%).Ogólny wiek rozwoju psychospołecznego badanej dziewczynki wzrósł o 4 miesiące (z 24 do 28 miesięcy). Natomiast deficyt rozwojowy zmniejszył się o 1 miesiąc (z 8 na 7 miesięcy).
Dostawca treści:: Repozytorium Uniwersytetu Jagiellońskiego

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Skocz do pozycji: 10.

Tytuł:: Zabawa we wczesnej terapii logopedycznej u dzieci z zespołem Downa
Games in early speech therapy of children with Down syndrome
Autorzy:: Kaptur, Ewa
Tematy:: early speech therapy
Down syndrome
games and speech; Pokaż więcej
Wydawca:: Uniwersytet im. Adama Mickiewicza w Poznaniu
Powiązania:: https://bibliotekanauki.pl/articles/1044561.pdf Link otwiera się w nowym oknie
Opis:: The concept of early speech therapy by a team of therapists of different specializations, including a speech and language pathologist, assumes a holistic approach to an infant’s development. Children with Down syndrome require the help of a speech and language pathologist since the first day of their lives. The article describes activating the child’s speech by incorporating games into the therapy.
Dostawca treści:: Biblioteka Nauki

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